Global Genes NEXT Report Interview

A short video by Co-Founder and Chair of Organization For Rare Diseases India, USA (ORDIUSA), Dr. Harsha Rajasimha, on the sidelines of the Global Genes Rare Patient Advocacy Summit 2019...

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7th International Conference on Rare and Undiagnosed Diseases

Organization for Rare Diseases India (ORDI) is pleased to invite you to 13th to 15th April 2019 Welcome Remarks India Keynote Panel: 1 hr 30 minutes Grand Challenges, Unmet Needs...

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RareCast Radio Interview

Radio Interview of ORDIUSA Founder and Board Director Harsha Rajasimha by Daniel Levine   Link to SoundCloud...

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Thousands marching against rare diseases; Still time to join Racefor7 2019

WASHINGTON D.C. – 02/13/2019 ( The Racefor7 Rare Disease Day run on Sunday, the 24th February is approaching the starting mark. Will you be joining them?   Traveling from Birmingham, Ala. to...

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The Racefor7 to Beat 7,000 Known Rare Diseases is On

A Global Approach to Advancing Drug Development for Rare Disease February 13, 2019 Runners in cities in the U.S. and India will join together in the Racefor7 event on February...

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Support for 2019 Racefor7USA Rallies Growing, Includes Summar, Jagadeesh; Still Needs You

WASHINGTON – 01/24/2019 ( Rare disease research needs global support. So, too, do the events planned for Rare Disease Day, 2019. On Sunday, the 24th February, 2019, the Organization for Rare...

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Towards Enabling Precision Medicine Cohort Studies at the Community Level

– Dr. Harsha K Rajasimha Co-Founder and Board Director, Organization for Rare Diseases India. Precision medicine paradigm is all about targeting medicines to patient cohorts that are most likely to...

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For Children of Lesser God, an Uphill Road

Bengaluru: For architect Arun Rajani the world came crashing down 12 years ago when he got to know that his 28-day-old daughter has been diagnosed with Down Syndrome. Reflecting on...

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Washington, D.C. Shows Care for Rare Diseases with Racefor7

WASHINGTON, March 8, 2018 /PRNewswire/ — Rain did not dampen spirits for those racing against rare diseases. Racefor7 supporters in Washington, D.C. were greeted with rainy skies on Feb. 25,...

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More about National Rare Disease Policy

Rare diseases, which are often referred to as orphan diseases, are estimated to have impacted 72-96 million people in India. The Indian government has now put a National Rare Disease...

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Upcoming Events
From 21-October-2019
to 22-October-2019

Rare Diseases and Orphan Products Breakthrough Summit October 21-22, 2019 in Washington, D.C.

Marriott Wardman Park
2660 Woodley Rd. NW
Washington, District of Columbia 20008
From 29-February-2020
to 21-June-2020

RaceFor7USA 2020

1) Washington DC
2) SF Bay area, CA
3) Greenville, SC
4) Boston (Acton), MA
5) Frisco, TX

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