ORDI Point of View Rare Diseases Policy Mar 2017

National Agenda on Rare Diseases: To review the current situation of rare diseases in India and define rare diseases in the Indian context To establish norms for laboratories/ centers for...

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IRDiRC conference, Paris – 2017

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Orphan Drug Act and Rare Disease Policy – Are they same?

Click here to download the article.  By Harsha Karur Rajasimha, PhD Co-founder, Organization for Rare Diseases India Co-Director, Center for Rare Diseases, George Mason...

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Organization for rare diseases India (ORDI) – addressing the challenges and opportunities for the Indian rare diseases’ community

A Review of the state of Rare Diseases in India By : HK RAJASIMHA, PB SHIROL, P RAMAMOORTHY, M...

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Making people realize that genetic problems are treatable is a big challenge | India Medical Times

By Dr I C Verma Director, Centre of Medical Genetics Sir Ganga Ram Hospital, New...

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Statements from doctors and hospitals

ORDI initiative By :...

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Marquette Intellectual Property Law Review

The Future of Clinical Trials: More Transparency and Pharmacogenomics By : HARSHAK.RAJASIMHA,...

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Upcoming Events
From 21-October-2019
to 22-October-2019

Rare Diseases and Orphan Products Breakthrough Summit October 21-22, 2019 in Washington, D.C.

Marriott Wardman Park
2660 Woodley Rd. NW
Washington, District of Columbia 20008
From 29-February-2020
to 21-June-2020

RaceFor7USA 2020

1) Washington DC
2) SF Bay area, CA
3) Greenville, SC
4) Boston (Acton), MA
5) Frisco, TX

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