CENTOGENE is pleased to announce its sponsorship of the Organization of Rare Diseases of India (ORDI). ORDI is a not-for-profit organization founded and advised by key opinion leaders from medicine, patients, industry, government and non-governmental organizations to address the unmet needs in the management of rare diseases in India. There are an estimated 70 million patients of rare diseases in India, most of whom experience long delays in diagnosis and management due to lack of awareness of these conditions even amongst the medical community. ORDI will lead a collaborative effort of healthcare, pharmaceutical, genetics, diagnostics & patient support organizations to improve the quality of life for rare disease patients in India through advocacy and educational efforts.
Harsha K. Rajasimha, MS, PhD, Founder Member, ORDI said, “ORDI’s mission is to engage all stakeholders of rare diseases to converge, debate and collaborate to improve the lives of patients with rare diseases in India. One of the several programs of ORDI involves setting up rare disease care coordination centers (RDCCC) in collaboration with major hospital hubs across India to improve the speed of diagnosis and increase accessibility of treatment options for patients.”