BENGALURU: Patients suffering from rare Mucopolysaccharidoses and other rare diseases and their families came together to appeal to the state government for providing treatment on the occasion of International Mucopolysaccharidoses (MPS) Day.
Dr Asha Benkappa, director of Indira Gandhi Institute of Child Health Hospital (IGICH), said at an event organized by Lysosomal Storage Disorder Support Society (LSDSS) and the Organization for Rare Diseases in India (ORDI: “We will provide all assistance to special children and their parents. Government alone can’t do everything as the cost of ERT is exorbitant for each child. Society should come forward and join as a humanity to help and assist these children who are 1 for every 25,000 births.
Dr Meenakshi Bhat, senior clinical genetics consultant at the Centre for Human