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Rare disease policy needs to be implemented immediately: Prasanna Shirol, Co- Founder & Executive Director, ORDI

In an interview with ETHealthworld, Prasanna Shirol, Co- Founder and Executive Director, Organization for Rare Disease India, Bengaluru, talks about the bottlenecks that still exist even after the formation of rare disease policy. Edited excerpts:

Why does India need a rare disease policy?

There are around 7000 rare diseases in the world but in India there is no proper

https://healthsavy.com

healthcare policy to address these rare diseases which are all life threatening, chronic and progressive in nature. So, there is a need for a rare disease policy to address all these challenges right from diagnosis, treatment and supportive care. That is why a rare disease policy is very important for India.

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