Govt Urged to Make Treatment of Rare Disorder Affordable

KARACHI: Health experts on Saturday said that the available treatment options for Lysosomal Storage Disorder (LSD) were beyond the reach of many affected people in the country.

They urged the government to devise a programme through which those diagnosed with the disorder could afford treatment facilities

These suggestions were made during an awareness raising seminar on the Lysosomal Storage Disorder (LSD) at local hotel in Karachi. The event was organized by National Institute of Blood Diseases (NIBD).

LSDs are inherited genetic defects which affect multiple organs and cause progressive physical or mental deterioration over time. Some patients survive into adulthood, but others with more severe symptoms may die in their teens, or earlier.

The delay in treatment leads to bleeding from nose and abnormal enlargement of some body organs which later results in death.

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