Our Mission

  1. Encouraging inclusion of India as a trial site in global clinical trials or enable access to global trials as an option for estimated 70 million patients living with rare diseases in India.
  2. Connecting patients living with rare diseases in India and USA with patient advocacy groups, with research, clinical trials and international Consortia such as IRDiRC, Globalgenes, and UDNI.
  3. Exchange and mutual co-operation for public health policy development/implementation Such as Rare Disease Policy and Orphan Drug Policy between USA, India and other countries.
  4. Organizing national and international conferences to bring all stakeholders of rare diseases together for debates and discussions.
  5. Facilitate cross-border research collaborations.
Upcoming Events
From 29-February-2020
to 21-June-2020

RaceFor7USA 2020

1) Washington DC
2) SF Bay area, CA
3) Greenville, SC
4) Boston (Acton), MA
5) Frisco, TX

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