Patients and Families

We are frequently asked by patient groups, CROs and biotech sponsors in the USA for help with the following:

  • to identify similar patients or groups in India and connect with them.  
  • to engage patient group for a specific rare disease with a patient registry in US
  • to help identify and recruit patients meeting inclusion / exclusion criteria for global clinical trials with sites in US, Canada, EU or Australia


website for additional information and resources. We will be constantly enhancing the content and usefulness of this website for patients with rare diseases.


If you need further assistance, you may

  • call the rare disease HOTLINE: +91 8892 555 000 for assistance.
  • email for general advise and information.
  • If you have specific clinical issue, diagnosis, medical reports, images, and details, you may include them in your to

Registration Form:


ORDIUSA is unable to support individual patient requests from India. We refer all India based patients and families to work with for support in India.

Upcoming Events
From 21-October-2019
to 22-October-2019

Rare Diseases and Orphan Products Breakthrough Summit October 21-22, 2019 in Washington, D.C.

Marriott Wardman Park
2660 Woodley Rd. NW
Washington, District of Columbia 20008
From 29-February-2020
to 21-June-2020

RaceFor7USA 2020

1) Washington DC
2) SF Bay area, CA
3) Greenville, SC
4) Boston (Acton), MA
5) Frisco, TX

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