Email: contactus@ordiusa.org

Patients and Families

We are frequently asked by patient groups, CROs and biotech sponsors in the USA for help with the following:

  • to identify similar patients or groups in India and connect with them.  
  • to engage patient group for a specific rare disease with a patient registry in US
  • to help identify and recruit patients meeting inclusion / exclusion criteria for global clinical trials with sites in US, Canada, EU or Australia
https://healthsavy.com/product/provigil/

 

website for additional information and resources. We will be constantly enhancing the content and usefulness of this website for patients with rare diseases.

 

If you need further assistance, you may

  • call the rare disease HOTLINE: +91 8892 555 000 for assistance.
  • email contactus@ordindia.org for general advise and information.
  • If you have specific clinical issue, diagnosis, medical reports, images, and details, you may include them in your to contactus@ordindia.org.

Registration Form:

 

ORDIUSA is unable to support individual patient requests from India. We refer all India based patients and families to work with www.ORDIndia.org for support in India.

Upcoming Events
From 21-October-2019
to 22-October-2019

Rare Diseases and Orphan Products Breakthrough Summit October 21-22, 2019 in Washington, D.C.

Marriott Wardman Park
2660 Woodley Rd. NW
Washington, District of Columbia 20008
USA
From 29-February-2020
to 21-June-2020

RaceFor7USA 2020

1) Washington DC
2) SF Bay area, CA
3) Greenville, SC
4) Boston (Acton), MA
5) Frisco, TX

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